Resources

SBH Queensland has the following books and videos available for loan to members.

Books

Spina Bifida

  • Answering Your Questions about Spina Bifida by Children's National Medical Center, Washington DC
  • Children with Spina Bifida: A Parent's Guide by Marlene Lutkenhoff
  • Living with Spina Bifida: Shared Experiences by Cumberland College
  • Living with Spina Bifida: A Guide for Families and Professionals by Adrian Sandler  

Hydrocephalus

  • Hydrocephalus: Patient Information Booklet by Medtronic PS Medical
  • About Hydrocephalus: A Book for Parents by Margie Derechin & Michael Edwards
  • Hydrocephalus: A Guide for Parents, Families & Friends by Chuck Toporek & Kellie Robinson

Schooling

  • Developing Inclusive School Communities: strategies for parents by Fae Kennish
  • One of the Kids: Educating Children with and without disabilities together, in the same classes and schools A guide for parents by Wendy Stroeve
  • Children with Spina Bifida and/or Hydrocephalus at School by ASBAH UK

Self-esteem and skills

  • The Straight Talk Manual: A Self-Esteem and Life Skills Workbook for Young People by Diane Brokenshire
  • Life Skills Activities for Secondary Students with Special Needs by Darlene Mannix
  • Social Skills Activities for Secondary Students with Special Needs by Darlene Mannix

Parenting

  • After the Tears: Parents Talk About Raising a Child with a Disability by Robin Simons
  • Facing the Crowd: managing other people's insensitivities to your disabled child by Deborah Fullwood & Peter Cronin
  • Baby and Child by Penelope Leach
     

Children's Storybooks

  • My Friend Andrew by Grace Moulton
  • Marty and his Red Wheelchair by Marty van der Kley

For adults

  • Sexuality and the Person with Spina Bifida by Stephen Sloan

Videos

  • Learning About Learning Disabilities
  • Teaching the Student with Spina Bifida
  • Reaching Potential: A Parent's Guide to Hydrocephalus
  • Protecting Against Latex Allergy

The following booklets, brochures and information sheets are freely available to anyone who would like a copy. They can be emailed to you (or mailed for a small charge to cover postage).

SBH Queensland booklets

  • Children with Spina Bifida and Hydrocephalus
  • From 6 months to 3 years
  • Children with Spina Bifida
  • Folic Acid and its Role in the Prevention of Neural Tube Defects
  • Spina Bifida Occulta
  • Early Childhood
  • Toileting for the Child with Spina Bifida
  • Handwriting for the child with spina bifida and hydrocephalus
  • The Child with Spina Bifida and Sport
  • Swimming for Children with Spina Bifida
  • Children with Hydrocephalus
  • Home Modifications
  • Spina Bifida (supplement from the Australian Family Physician 2001;30 (suppl 2)
     

SBH Queensland brochures

  • Spina Bifida and Hydrocephalus: The facts to know
  • Hydrocephalus: What's that?
  • Natural Rubber Latex Allergy
  • To drive or not to drive: Answering all your questions about getting a driver's licence
  • It's up to you: Taking responsibility for your own health
     

SBH Queensland information sheets

  • Spina bifida: How it starts
  • Types of spina bifida
  • Genetics and folic acid
  • Hydrocephalus
  • Shunt diagram
  • Level of lesion and walking
  • Lipomas
  • Spinal cord tethering
  • Chiari II malformation
  • Skin sensation
  • Guide to wheelchair maintenance
  • Ideas for bowel training
  • Ideas for bladder training
  • Symptoms of a malfunctioning shunt
  • The MACE procedure
  • Precocious Puberty
  • Sacral Agenesis
  • Sleep Apnoea
  • Basic procedure for clean intermittent catheterisation
  • Anti-epileptic drugs and spina bifida
  • Spasmodic tortocollis