SBH Queensland

Resources

SBH Queensland has the following books and videos available for loan to members.

Books

Spina Bifida

• Answering Your Questions about Spina Bifida by Children’s National Medical Center, Washington DC
• Children with Spina Bifida: A Parent’s Guide by Marlene Lutkenhoff
• Living with Spina Bifida: Shared Experiences by Cumberland College
• Living with Spina Bifida: A Guide for Families and Professionals by Adrian Sandler

Hydrocephalus

• Hydrocephalus: Patient Information Booklet by Medtronic PS Medical
• About Hydrocephalus: A Book for Parents by Margie Derechin & Michael Edwards
• Hydrocephalus: A Guide for Parents, Families & Friends by Chuck Toporek & Kellie Robinson

Schooling

• Developing Inclusive School Communities: strategies for parents by Fae Kennish
• One of the Kids: Educating Children with and without disabilities together, in the same classes and schools A guide for parents by Wendy Stroeve
• Children with Spina Bifida and/or Hydrocephalus at School by ASBAH UK

Self-esteem and skills

• The Straight Talk Manual: A Self-Esteem and Life Skills Workbook for Young People by Diane Brokenshire
• Life Skills Activities for Secondary Students with Special Needs by Darlene Mannix
• Social Skills Activities for Secondary Students with Special Needs by Darlene Mannix

Parenting

• After the Tears: Parents Talk About Raising a Child with a Disability by Robin Simons
• Facing the Crowd: managing other people’s insensitivities to your disabled child by Deborah Fullwood & Peter Cronin
• Baby and Child by Penelope Leach

Children’s Storybooks

• My Friend Andrew by Grace Moulton
• Marty and his Red Wheelchair by Marty van der Kley

For adults

• Sexuality and the Person with Spina Bifida by Stephen Sloan

Videos

• Learning About Learning Disabilities
• Teaching the Student with Spina Bifida
• Reaching Potential: A Parent’s Guide to Hydrocephalus
• Protecting Against Latex Allergy

The following booklets, brochures and information sheets are freely available to anyone who would like a copy. They can be emailed to you (or mailed for a small charge to cover postage).

SBH Queensland booklets

• Children with Spina Bifida and Hydrocephalus
• From 6 months to 3 years
• Children with Spina Bifida
• Folic Acid and its Role in the Prevention of Neural Tube Defects
• Spina Bifida Occulta
• Early Childhood
• Toileting for the Child with Spina Bifida
• Handwriting for the child with spina bifida and hydrocephalus
• The Child with Spina Bifida and Sport
• Swimming for Children with Spina Bifida
• Children with Hydrocephalus
• Home Modifications
• Spina Bifida (supplement from the Australian Family Physician 2001;30 (suppl 2)

SBH Queensland brochures

• Spina Bifida and Hydrocephalus: The facts to know
• Hydrocephalus: What’s that?
• Natural Rubber Latex Allergy
• To drive or not to drive: Answering all your questions about getting a driver’s licence
• It’s up to you: Taking responsibility for your own health

SBH Queensland information sheets

• Spina bifida: How it starts
• Types of spina bifida
• Genetics and folic acid
• Hydrocephalus
• Shunt diagram
• Level of lesion and walking
• Lipomas
• Spinal cord tethering
• Chiari II malformation
• Skin sensation
• Guide to wheelchair maintenance
• Ideas for bowel training
• Ideas for bladder training
• Symptoms of a malfunctioning shunt
• The MACE procedure
• Precocious Puberty
• Sacral Agenesis
• Sleep Apnoea
• Basic procedure for clean intermittent catheterisation
• Anti-epileptic drugs and spina bifida
• Spasmodic tortocollis